Zebra Heard!!!

April Zebra is Online! Friday, April 19th at 7:00pm. 

Theme: Family & Caregivers

We’d like to invite our Zebra’s to bring parents, spouses, partners, and health caregivers of any kind to join this month. After our fun and sharing we’ll invite caregivers to a special breakout room for facilitated safe space for you to share as well, or just listen. We know how hard this is for you too.

Come Let us Support You Too!

More events on our new page The Roads We Travel.


April: Online

May: Gastonia, NC

June: Online & Fort Mill, SC

July: Triangle, NC

August: Online

September: Atlanta Area

Register for event details and updates, and follow on socials!

Zebra Heard!!!

Companionship, Community and Creative Fun.

Sign Up below for event details and announcements!

Every third Friday or Saturday of each month.

“Joy does not simply happen to us.

We have to choose joy and keep choosing it every day.”

– Henri Nouwen

This patient-led event invites Zebras, Non-Zebras, their families, and Clinicians/Providers in our community to come and H-E-A-R each other.

H – Hear our words AND our bodies

A – Advocate for ourselves, for our families, for others

E – Educate those who help us and Encourage them to listen

R – Redeem our experiences with Joy and Community

“Zebra Heard” is a regularly occurring gathering of public Umi events to honor, represent, and thrive with the Ehlers-Danlos Syndrome and Hypermobile Spectrum Disorder community. Guest speakers have included mothers, advocates, veterans, and more.

Come hear their stories. Come bring your own!

We will have open-mic time for anyone who wishes to share.

Inquire about membership here.


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